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Tipp family feature in SBHI awareness event

The aim of World Spina Bifida and Hydrocephalus Day (WSBHD) on Wednesday, October 25th, is to raise awareness and understanding about spina bifida and hydrocephalus. SBHI is celebrating Spina Bifida and Hydrocephalus Awareness Day for a whole week with the initiative #sbhiawarenessweek.


 

For six out of the seven days of SBHI's Spina Bifida and Hydrocephalus Awareness Week (Monday to Sunday, October 23rd to 29th), we will publish two members’ stories on our website (www.sbhi.ie/aw2017). Then on World Spina Bifida and Hydrocephalus Day, we will share information to remind the public and policymakers that spina bifida and hydrocephalus are a reality; that it is imperative to increase awareness about them and improve the lives of people living with these conditions.


 

A total of 13 of our members and their parents, from young children to teenagers, to young and mature adults, have graciously and generously shared their experiences of adversity, strength, courage, and determination.


 

One of the member families sharing their story are Cashel's Joe and Jacqueline Riordan, whose six-year-old daughter Alicia lives with spina bifida.